Today we went down to Littleton for Ryan to receive his first Remicade transfusion. It went smoothly and he did wonderfully.
He was hooked up to a standard arm IV and began a regular saline drip to start. Then our nurse added the Remicade viles one at a time over the course of about 3.5 hours. Praise the Lord we do not pay this price tag, but this magical drug runs at $1,000 per little glass bottle. And they administer your dose based on weight: you weigh more, you pay more. Good night that stuff if pricey! But it works, so I suppose the medical industry will charge whatever they like.
We brought along the iPad for Ryan to watch TV shows or check his e-mail, and one or twice he dozed. It was a relaxed visit and went as well as we could have expected. It did leave him fatigued and with a headache which we're told is normal.
Random facts: Remicade is an immuno-suppressant and is a genetically engineered antibody that blocks inflammation caused by a protein called tumor necrosis factor. It basically shuts of his immune system, because it wrongly attacks his healthy tissue thus causing a flare up and all the other nasty side effects of Crohn's. Having no immune system is a little scary, especially with cold/flu coming up soon but we will try to stay healthy around here!
So while Ryan was a rockstar today I was struck with the most heinous case of menstrual cramps (sorry for the TMI) during our entire 3.5 hour visit, so alas I was curled up in a ball on the second chair in the room. Our nurse finally had mercy on my and "found two motrins in her purse" for me to have. Blessed drugs, I never thought I would say this, but how we love you. I'm left feeling totally drained today and so looking forward to health, energy, and restoration. We'll keep you posted on how he progresses this week.
Studly husband all hooked up in his armchair
Remicade goodies. We love you, whoever you are, that invented Remicade
Our set up: two big comfy chairs in a room with fancy dimmer lights. Very relaxing :)