Friday, May 11, 2012

Ryan Update

Ryan's surgery was canceled.  That feels pretty unfortunate to us and very last minute.

We got a call about 3:00 pm yesterday afternoon to inform us that important medical records and previous tests from 2007 finally reached Ryan's current doctor.  Based on those biopsies and results, Ryan was diagnosed with Crohn's Disease.  The horrible symptoms he has been experiencing has been what is called a Crohn's flare up--characterized by weight loss, nausea, fevers, diarrhea, abdominal pain, bloody stool, fatigue and more.  Yup, that is my husband for the last 6 weeks.

They reason for canceling the surgery was to attempt to treat this Crohn's flare up with medications instead of surgery.  And also that he was not in a healthy enough physical state to endure surgery prep and surgery itself.

We're hopeful for the medications, grateful for some answers but honestly completely frustrated that the doctor's offices didn't communicate well and that has caused Ryan to suffer for 6 weeks.  This isn't a soapbox to complain but how did all of the medical records go MIA for 6 weeks?  How did his symptoms go so undiagnosed for so long?  Why is it only 24 hours before a surgery some answers are offered??  Ugh!

Well thank Jesus that Ryan is on some intense medications, resting, and finally take in fluids and food regularly.  He is has seem a teeny tiny bit of improvement but still a long way to go.

Prayers are still coveted for his body, health, and our hearts.  Appreciate you all!

10 comments:

  1. Hey guys, Connie and I are praying for you! It's so tough to hear about friends suffering. Don't get discouraged. This sudden change could be a very good thing. Connie's cousin was diagnosed with Crohn's disease this last year. He and his wife could not ever leave the house because if/when he needed a bathroom (and it was often) he needed a lot of time and was extremely uncomfortable. They finally got him on the right medication and his life is drastically better. I hope that is some encouragement since surgery is such a scary thing. Praying the meds work. Let us know if you need anything!

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  2. Thanks Casey. We appreciate you Clarks :) We're praying a diagnosis will bring relief from symptoms because now we know how to treat it.

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  3. I'm praying this diagnosis brings relief! Sometimes knowing what you're fighting is half the battle. When things come from darkness to light, the Lord works. I don't know if that is a stretch or an encouragement... haha. Love you guys and your hearts. So willing to trust God no matter what. xoxo

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    1. We hope so Angi. So faar 24 hours of meds hasn't made a difference BUT it did take 6 weeks for him to get this sick so we have to be patient. And I am encouraged by things coming from darkness into light. We love and appreciate you!

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  4. I am continuing to pray for both of you! That is very frustrating, but I guess good that he has avoided a surgery? And that he has a diagnosis they can treat him with now! Hopefully there will be more prayers through the Prayer Wall as well :) Hopefully now he can get stable and healthy again after the last 6 weeks. And ready for your move!

    Blessings,
    Nicole

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    1. Thanks Nicole! Thanks for praying for us. It IS good he avoided surgery as long as these meds are the proper course of action. And I have forgotten to put on our blog that the move is pretty much off the table unless he gets well VERY quickly then his work might send us in July. So we might be looking forward to that!

      So appreciate your support Nicole and loving the prayer wall! You are a woman of faith!

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  5. How completely frustrating! But good to finally have an answer. Praying that you all get some rest, and that things start to improve.

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    1. Thanks Stacey-we hope so too. Ry is still SUPER nauseous but praying that improves. Thanks for lifting us up.

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  6. Carly, I will be lifting your husband up in prayer. Maybe the canceled surgery was a blessing in disguise. Sometimes we don't understand God's plan and timing, but remember, His plan and timing is perfect.
    My husband suffers from IBS and his brother has Crohn's, do I understand what you are going through; it is a difficult, frustrating illness that affects the entire family.

    Prayers for you both!

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    1. appreciate it sarah! any insight you have to care for him is welcome--diet, meds, etc thanks friend :)

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